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Rocky Road or Roller Coaster or just Life

I feel my rocky road has now become a roller coaster and I would now like to get off, enough is enough.

Yes I chose to have my latest operation but I have struggled with this decision as it was another general anaesthetic and time off work, not to mention the pain and knocking me back physically again. Why do it, it’s only a boob – cosmetic am I that vain ? But it goes deeper than that it’s about confidence and feeling womanly. I am aware my family have struggled to understand my need to have a go at making my pretend boob fuller and a better shape, and I am sorry to have put them through it, but so far the results have been worth it. I had liposuction from my lower tummy (unfortunately not enough to make me a size smaller ๐Ÿ˜•) they then do something with the fat which makes it softer the put it into the boob, I have bruises on bruises, the pain wasn’t as bad as I had expected but still very uncomfortable. They still had issues trying to get a cannula in – the thumb was used, after suggesting the foot!! Chemo still giving…….

Today I have attended the colposcopy clinic as my smear results were abnormal, I waited 14 weeks for these results. So today I went and yep he was surprised at what he found, his words “Well I wasn’t expecting that” . My cervix doesn’t look how it should, it’s covered in a white fluff, he said polyp like, oh great this is me – doesn’t surprise me! He says he would like to perform a loop excision biopsy, this is where they use an electric current to remove abnormal tissue, a local anaesthetic was used to numb my cervix, he then removed the tissue using a wire loop. The smell was awful, burning tissue but apart from that and it being uncomfortable I was ok. The nursing staff were amazing very calming. The consultant explained that he thinks its my bodies reaction to tamoxifen, he doesn’t think it’s cancer, but could have become if left or just spread, he is sending a biopsy off – so now the wait begins, possibly 4 weeks. “Cancer the gift that keeps on giving”, as someone said, yep please stop giving I’ve had enough. My family need me now so just do one …… stop this roller coaster I want to get off! I feel quite low and tearful it sometimes just gets too much and my positivity takes a knock.

Tomorrow is another day

Turning a corner ….

It’s been a while since I’ve blogged, life has moved along, as it does. Good and not so good days, more good ones though which is great.

I don’t think anyone would disagree that we have had a rough 18 months, and that myself and family have struggled, however we have turned a corner over the last few weeks, I have been feeling a lot better, a lovely week away with my kids helped, and yesterday was a particularly good day. My daughter got her A level results, not only did she sit them she passed them with some fantastic grades – admittedly not what she wanted but with what she has been through they are amazing- she inspires me every day, she would hate that I am say this, but she does, with all her struggles she has not once given up, she has ploughed on and achieved some great results. I hope one day she will look back and be as proud of herself as I am. She has lots of options now, and time to make the right decisions.

Then today, I went to work with my hair curly, it seems it’s got suddenly longer and I like it. My lovely work friends were surprised to see it and said Adrienne is back!! Which is how I felt, for the first time I looked in the mirror and thought I am back ๐Ÿ˜Š oh happy happy days. Also this week the hospital rang and gave me a date for my tweeking so I will soon have even boobs again.

I had an afternoon tea in aid of breast cancer care, we raised ยฃ500 with gift aid, which is amazing and I am so pleased to be able to donate it to breast cancer care and support other people effected by breast cancer – I can’t thank all who donated enough xx โคโค

Rocky road or cha cha

Saw this quote, just at the right time as I was feeling low about things. Fed up of taking 2 steps forward and 1 back but actually I am just dancing ๐Ÿ’ƒ

Dancing is good, it’s normal and normality is underrated…..kids falling out and shouting is normal yay to normal, it’s been a tough week, so when things are normal I appreciate it. I am suffering with some side effects from the tamoxifen- I must be fed up as I rang my breast care nurse (BCN) to discuss and then I’ve been to the Dr this morning – reoccurring thrush!! And nasty thrush at that, it got me very low last week, just seems to be one thing after another, I think I’ve turned a corner as my fatigue is more manageable- I have more normality in my life and then bang side effects hit me. Most of them I can deal with/able to tell myself its worth it for the benefits of tamoxifen (The hormone oestrogen can stimulate some breast cancers to grow. Tamoxifen will be prescribed if your breast cancer has receptors within the cell that bind to the hormone oestrogen. Invasive breast cancers are tested for oestrogen receptors using tissue from a biopsy or after surgery. When oestrogen binds to these receptors, it can stimulate the cancer to grow. Tamoxifen works on the whole body and blocks the effects of oestrogen on these receptors. This helps to stop oestrogen from encouraging any breast cancer cells to grow) but nasty thrush wasn’t manageable. Unfortunately there really isn’t an alternative to tamoxifen for pre menopausal ladies (I understand there are other drugs on trial but not tried and tested as much as tamoxifen) – so we can try to stop the symptoms, I was hoping the Dr would give me tablets that you can take once a week for 6 months (someone advised me to look at the NICE guidelines for thrush, so I was in the know when I went ๐Ÿ˜€ thank you to my lovely breast buddie xx). But nope she wants to air on the side of caution and do a swap, so need to wait for next bout ๐Ÿคจ. Because of all that is going on hormone wise, I am dry down there too, my BCN said it’s part and parcel of tamoxifen! Yippee ….. she said ask for some cream whilst at the Dr but be aware they may not want to give me any as they have a small amount of oestrogen in them, which I should be avoiding, however it’s so small the benefits out way the risks, so I am prepared and give a good explanation and after discussing tablet verses cream (tablet has slightly more oestrogen) we go for cream, I get home and what do I do? Yes I read the flipping leaflet and it clearly say DO NOT use if you’ve had breast cancer, now I am all of a dither- this is silly I know, my BCN said to ask for it, a menopause specialist on the breast cancer care course said they were ok to use, and I read the leaflet and think should I!! Well I am going to ring my BCN and double check the make is ok ๐Ÿค”. Bonkers that’s what my brain is bonkers, but I know I’ll not settle if I don’t double check.

Can you see why I feel like my rocky road is 2 steps forward and 1 back – maybe I’ll just be cha cha-ing the rest of the way through life

Rocky road still continues……

A simple quote but not easy to do, since cancer and treatment, I have said before you spend so much time analysing every ache and pain “has it returned?” I feel silly, I feel paranoid, and at times I just feel stark raving bonkers – but on a positive day I can cope well and my brain will play ball and tell me everything is just fine.

In some ways it seems harder now that treatment (well treatment that we talk about) is over – chemo done, hair lost and re-growing, not to mention the surgery to cut the cancer out and re-build my body, its the hidden disease again. I am trying to get a “new” normal life – all the leaflets/books talk about a “new” normal, but do I want a “new” normal, how am I meant to actually like my “new” normal? Yes my hair is growing back, but I still struggle with it, actually let’s be honest I hate it, I want my long hair back! I have gained weight from the hormone tablets, I ache because of these tablets too. Not to mention the IBS ๐Ÿ˜”. Fatigue I will say no more than wow it still hits me, my immune system is still low – I know it is as I have things to deal with due to this. I have dry skin/itchy legs, hands and feet/veins are still sore, my operation site goes from numb to painful regularly. Armpit where lymph nodes removed, can still have sharp pains. Is this my “new” normal?

Its certainly not all bad, in fact its really okay on the whole, I have more good days than bad. The other Sunday was an excellent day – armed with new comfy bras that make my boobs look normal/back to being my boobs. A hair band which I actually liked, wow how good did I feel ๐Ÿ˜Š

I have just had a week away – it was just the job, we hired a house and I relaxed, I also did more excerise- I got back on a bike, which I haven’t done since my operation, and we walked. It was/is hard going away, leaving my comfort zone of home, its strange how I now view things differently and how my confidence has been knocked. But home is safe and looked after me whilst I was ill.

I have also had a huge change at work – I call it huge, 18 months ago I would have taken it in my stride, but now its huge. I have moved office and area, not new colleagues, ones I have been working with. New clinics and cafes though, its seems that since cancer things that I could cope with well before, are now a huge issue, is this just me or is it just a coping mechanism? I hear people say they are more relaxed after a cancer diagnosis but i feel more tightly sprung, maybe with time I’ll relax?? I also had my first week of 5 mornings of getting up for work for 16 months, oh dear it was hard, by friday night i was ill – sick and had to go to bed, Saturday I did nothing. Hopefully this will ease with time, I have been back at work 5 months and it’s got easier with each month, but I have had to be careful not to over do it at home too.

Moving forward …..

True – however its hard as feels at times it takes over your life, thoughts and dreams, it can be all consuming. Even once you are in remission it’s hard to move on, as the side effects of treatment can last a longtime, as well as treatment lasting years….

At city hospital second days in a row ๐Ÿ˜€ yesterday was for a tattoo, I say tattoo it’s what they call it, they use the same technique as a tattoo but they don’t use permanent ink. It’s to give the new nipple and areola colour, best match as possible to the old/original nipple. The nurse was great she explained everything well, went through risks etc. Unfortunately they only last around 3 years, but to help avoid too much fading, I was told to not sunbathe topless ๐Ÿ˜‚ and if swimming to cover with a waterproof plaster. I need to keep it covered for 24hrs then to put nappy rash cream on it twice a day…….avoid soaking in the bath or direct water from the shower for 2 weeks. Also not to use soap or perfumes etc for 2 weeks. Then once healed in 8 weeks I can have the colour filled/topped up. Due to the reconstruction having been made using back tissue the nurse needed to set the needle longer to get through the skin, it’s tougher than breast tissue or tummy tissue. Some areas I couldn’t feel anything, some areas I felt in my back and another area hurt !! I haven’t seen the results yet so watch this space ๐Ÿค” I am nervous about taking the dressing off, may take a while before I actually look think I am a little scared ….. I will admit I nearly didn’t go ahead with it, I was so nervous, which seems strange after all I been through this should be child’s play. Didn’t help that appointment was next to chemo suite not great memories there, I wobbled but stayed strong.

I was at the breast institute today seeing a practice nurse for my first year check up. I am pleased to report she checked my glands and both breasts and all is good ๐Ÿ˜€ and all my aches and pains are due to chemo and nerves slowly growing back, could take a couple of years for my back to calm down. The sharp pains in fingers and toes is due to chemo, my sore veins in left arm is chemo again. Fatigue could be tamoxifen but more likely it’s chemo – chemo the gift that keeps on giving ๐Ÿค” even 7 months after finishing. Still it is good to hear it’s normal and to be expected, even the leg cramps!

It’s very hard going back to the breast institute and chemo suite, but I am hoping the more I go the easier it’ll get, especially if it’s good news each time I go ๐Ÿ˜€ I am back in March to see my surgeon about filling the new breast as it needs plumping up, although the nurses yesterday were very impressed with Mr Kristjen’s handy work – it’s reassuring to know that they are looking after me, I couldn’t ask for better care than I’ve received from Nottingham Breast Institute……

A year on …..

A year on from my operation – I really can not believe it’s a year since my body changed, I am still not used to it – I had 45 years to get used to how it was before and just a year to start to come to terms with it now. I think I am getting used to it slowly…… on a good day. That is visually speaking, although new boob needs some tweaking, I am booked in for the nipple to be tattooed and to see consultant about filling it out a bit. Once these are done I am sure I’ll be so much happier with my new shape. It’s the feel of my new body that I am struggling to get used to, the pull in the back which seems to be 24/7. The itch in the new breast that needs scratching via the back. The pain in my armpit where my lymph nodes used to be – even a year on. The ache in both arms, one seems to be due to my vains still being sore after chemo and the other I am not sure. And not forgetting fatigue wow how that can floor me ๐Ÿค”

The physical sign of cancer treatment I can cope with, it’s just niggles and that’s fine cos I am here over a year later, back at work and starting to live life again. It’s the psychological side that’s so very very hard, the mixture of I should be jumping around and running marathons (me run any where is too laughable) I am in-remission, I am wellish and the guilt that some days I am not happy, I am consumed by worry and insecurities that I never felt before. Every ache or pain, new or old is scrutinised the what ifs, is it back. Is that a sign of secondary cancer? And around it goes, I have even had thoughts my tamoxifen isn’t working, I have no side effects my periods have returned, does this mean tamoxifen isn’t doing what it should – keeping cancer at bay. I know on a good day all these thoughts are normal but also not actually right, on a good day I know I am just lucky that tamoxifen hasn’t given me any side effects, and my aches are normal everyday aches after the year my bodies been through. Some times I need to hear that from ladies who have also been there – I never thought that I would need that kind of support, but having met these inspiring ladies and leaning on them, I understand the power of shared experiences – we need to remember we are never alone, there is always someone out there that understands and wants to help ๐Ÿ˜€

2017 – do one, hello 2018

Christmas is over and done and I survived it, wasn’t sure if I’d get through without being a bubblering mess!! Tears do seem to come quite easily these days. You would think that after last Christmas and the stress of being told I had cancer, then needing to decide the type of surgry I would have, that this year I would be happy and bouncy and looking forward to the festive season…… but no our emotions are funny things, and seem to have a mind of their own. There is a lot of pressure to enjoy Christmas but it can be a sad time for many people, but every advert and song seems to be cheerful and shows happy families enjoying time together, is this reality? Or just something we strive for? I did enjoy Christmas I sat back and relaxed, enjoyed the fact my kids where with me, enjoyed (don’t tell them this bit ๐Ÿ˜‚) playing board games with them (gets a little competitive). I enjoyed the fact that we didn’t have anything else to do or to be anywhere else than at home together. No Xbox friends, no FB messages just time together ๐Ÿ˜€ – and I will admit now that i am stronger that last year I wasn’t sure if I’d see this one – I took lots of pictures of how we decorated the house, I made everyone help last year, this way if I had not of been here this year, they could make it look the same if they wanted too. Sad as I think back, but my way of getting through Christmas 2016. 

It’s new years eve, the eve of new beginnings. I am feeling ok about this, in fact quite positive about 2018, I have many people rooting for me, and I feel it everyday, from work colleagues to old friends and some very new friends, I can’t express how knowing people care really helps in times of trouble – people genuinely caring, they may not know what to say but they are honest and tell you that they don’t. So in 2018 I will not be taking these friends for granted, I will be checking they are ok and telling them I love them. I will also be kind to myself – not in a selfish way but I will try not to worry so much, to relax more – exercise more, eat better ๐Ÿ˜‚๐Ÿ˜‚ I said I’d try …….. life is short and we all deserve to be happy. 

I am so proud of my children and how they are bouncing back from the horrors of 2017. It’s be tough on them and they have tried to carry on as normal, my returning to work is going to be hard for them as I will be shattered when I get in, but it’s such a positive sign too, the positive totally out way the negative โค

Thank you all for supporting me in 2017, here’s to a happy & healthy 2018 to you all – much love, enjoy tonight and be safe xxxx